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New [May. 2nd, 2008|12:59 am]
Survivors of Ectopic Pregnancy

lady_ashe
Intro:

Name: DiAnna
Age: 30
Date of EP: Halloween 2002
Currently: (ttcing, had child, other): Mom to three, two before the EP, one conceived less than 2 months later (by some miracle).
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A Small Victory [Sep. 29th, 2006|09:50 pm]
Survivors of Ectopic Pregnancy

cant_wake_up
My husband and I would like to tell you all about our non-profit organization, A Small Victory http://asmallvictory.org/.Collapse )

If this is against the rules of this community please feel free to remove the post. Thank you!
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Scare [Jun. 11th, 2006|12:51 am]
Survivors of Ectopic Pregnancy

kesmun
[mood |calmcalm]

This, I think, doesn't bode well for the future.

It started with what I thought was ovulation cramping about Tuesday or Wednesday. It got pretty steadily worse, until I had a pretty bad fever spike not too long after I got up yesterday. Yippee skippy. I went to the ER, and eventually got diagnosed with an ovarian cyst (after a pregnancy test came back negative). On the same side as my previous ectopic. This doesn't give me a whole lot of hope for anything to happen from that side, anyway. *Sigh*

HusBrat is a sweetheart. I told him that doctors tend to recommend after the third (I think) ectopic that you quit trying to get pregnant. He said that if I have another one, he doesn't want to put me at risk for even a third, much less any further. I've wanted children for so long, yet It is nice to have a man who's far more worried about me than nebulous children.

Even though he'd been up since 3 am (he works from 5 to 1:30), he stayed with me the whole time. I don't think I could ask for a more wonderful husband.

As far as medical stuff goes, all I can do is pain manage until the cyst goes away, which is apparently likely around my next period. *Shrug* I'm in less pain right now than I have been most of the week, and for that I'm grateful.
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(no subject) [May. 14th, 2006|10:49 am]
Survivors of Ectopic Pregnancy

kesmun
[mood |sadsad]

Today is hard for many of us. We are mothers, even if we haven't had other children. As one friend of a friend put it last year, we are mommies of angels.

So whether or not you have other children, Happy Mother's Day to all those who have gone through this heartbreak.
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My story... [Mar. 24th, 2006|08:08 pm]
Survivors of Ectopic Pregnancy

shelator
[mood |hopefulhopeful]

Here's hopefully not too long an account of my story...
I became pregnant in June 2005, our first baby. I had cramping, slight bleeding and shoulder pain pretty much from two weeks onwards, although when I went to see my GP about it, he put it down to indigestion and the usual twinges some women get in early pregnancy. I didn't realise I had all the classic symptoms of an ectopic pregnancy.

A few days after I saw my GP I had to be rushed to A&E at my local hospital, the pain was immense and the bleeding was getting heavier. Because I went to hospital on a weekend, I had to wait until Monday for them to scan me and diagnose what the problem was!! They wouldn't give me painkillers because I was pregnant. I can't tell you how angry I was.

On Monday morning they took me to have a scan where they saw it was an ectopic pregnancy, it was awful. That afternoon I was taken into theatre where I had my baby and my left fallopian tube removed. The operation apparently should have taken under an hour, but due to 'complications' I was in theatre for four hours. I lost a lot of blood and had breathing difficulties under anaesthetic. Trust me to make things complicated!

A week later they let me go home where I stayed for three weeks before going back to full time work. I discovered the Ectopic Pregnancy Trust (www.ectopic.org) who were fantastic. I had little information or support from the hospital, the the EPT answered all my questions and were there when I needed reassurance. I am now working as a volunteer for them in my spare time.

I'm not over the loss of my baby, I still cry about it, I still miss him, I still grieve. On my would-have-been due date we went to one of our favourite spots on the coast and laid some flowers.

Since Christmas we have been TTC again, but no baby yet :(
It's difficult to comes to terms with because last time it happened without us even having to try all that hard, it was almost instant! Now we have been trying for nearly four months and still nothing. It makes you wonder if it will ever happen! But we have everything (except my legs!!) crossed.
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Intro [Feb. 14th, 2006|03:53 pm]
Survivors of Ectopic Pregnancy

kesmun
[mood |calmcalm]

A friend is going through a miscarriage right now, and joined miscarriage, and until I saw her posting on that, I never thought to look for an ectopic community.

My name is Kes Yocum, I'm 30, and I had an ectopic pregnancy a little over 9 years ago. I have since divorced and remarried, but still have no children, and have not been pregnant since.

A few days before my 21st birthday, I went to the hospital corpsman on my ship (I was in the US Navy at the time), complaining of bleeding past my normal menstrual cycle. I actually thought that an accident I'd been in the week previous might be causing some internal bleeding. I'd been clipped by a car as I was crossing the street and thrown to the ground. I had fairly severe contusions on my right leg, and I thought something might have been jarred loose elsewhere.

The corpsman (female) simply gave me a huge maxi pad and told me to come back if the bleeding got worse. The next morning, I went back and told both her and the senior corpsman that I wanted to be seen at the base clinic NOW. I went to the base clinic, described my symptoms to the Physicians' Assistant ensign. He immediately said that he thought I was pregnant, and since I was bleeding, that it was ectopic. He gave me a pregnancy test, it came up positive. He sent me to the local civilian hospital for an ultrasound. They actually couldn't find any fetal tissue with the ultrasound and eventually sent me in for an exploratory laproscopy. The laproscopy found the tissue in my left tube and they scraped it out. I got told that they saved the tube, but little else. I did get told that when I get pregnant, I'll need an ultrasound ASAP to check for another one, since scraping the tissue from the tube caused a bit of scarring, which is likely to provide a place for another latch-on.

Thus is my story so far.
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(no subject) [Sep. 27th, 2005|10:10 pm]
Survivors of Ectopic Pregnancy

crustyk
Following in the steps of luv4peanut and holla_backgirl here are my experiences:



First time round: After 3 miscarriages and a perfectly normal and healthy pregnancy with my son, I was ecstatic to discover that I was approx. 5 weeks pregnant. My son was 9 months old and we felt that although very close to his birth, we were lucky enough to get to this stage again anyway and the only thing that crossed my mind was whether we may miscarry again. To say that miscarrying previously was devastating is an understatement.

It was late March 2004, and we were staying with my parents in Florida (I live in the UK and frequently travel to Florida - my work is also based there). We discovered I was pregnant while Finn was in the bath. Four days later, whilst explaining that I didn't want to get in the jacuzzi (I was secretly lamenting my loss of jacuzzi time!), I fell over. This is the only way to describe the force of the pain that hit me. One second I was up, the next I was curled in a ball by the pool. My partner Dan shot out of the pool and carried me up to my room.

My explanation to my parents was that I had period pains and would be cool in an hour. My mum was shocked by how white I looked (I'm naturally brown by the way, so this is quite something!). Dan and I, once the pain had subsided (and it did) discussed the possibility of a 4th miscarriage. When I woke up at 4am with fresh blood seeping from me, I guessed that all was not right. Stupidly, and because my parents didn't know (I didn't want to put them through the misery of a 4th miscarriage - I needed to do this alone) I decided to wait until I got back to the UK which was 24 hours away. I had no further pain but saw a nurse on my return who scanned me and confirmed an empty womb. She also explained that the following day - my 32nd birthday - I would require emergency surgery.

Laparoscopy. I'd never heard that word and it mean't nothing to me at the time. Ha! So, after various internal probes - and I know you know what I mean - I was wheeled down to surgery. I woke up on my birthday morning at 5am so I could drink a cup of tea and smell the toast I had pleaded with Dan to make so I could at least smell it! After surgery I was told that the ecoptic was small, the tube had been saved and they were gobsmacked as to how it had happened in the first place. My tubes were clear. Unfortunately I contracted an infection in one of the lap sites (story of my life) and spent another 3 weeks on antibiotics unable to move. Didn't exactly make recovery a picnic ;-)

April 3rd 2005. Almost a year to the day. I had been feeling low for 6 months or so and had checked in with my doctor about taking tests for diabetes, thyroid problems etc. The result of the tests were negative. My doctor put it down to Christmas, relatives staying with me, a busy social life, an energetic toddler and my age (33 FFS!!). She also suggested a pregnancy test. I had experienced "ovulation spotting" for the first time the previous month and mentioned it to her. However, I had also had two extremely normal periods. I did the test. It was positive. I was completely and utterly gobsmacked. I went to the early pregnancy unit (again) that day and was told I needed to be operated on NOW as my tube was in danger of rupture. We could see the pregnancy in my right tube and it was BIG. I was lucky to be asked consent for the removal of a tube (laparoscopally, if possible) which I did - although I wouldn't give consent for anything else - no further reproductive organs. Just as a note - YOU CAN DO THIS. The forms look as if you have no choice but to sign your womb way also if there's an emergency but there are further options. Granted, these options may endanger your life but you must know that you are FREE to make the choice.
Long story short, they removed my right tube.

I don't know about you girls but I'm in limbo. I know how lucky I am to be alive, but - and correct me if I'm wrong - nothing takes away from me the fact that I lost a baby and am trying for another. I thought, first time round - bad luck, but second? I feel like maybe I shouldn't be having another child - maybe this was meant to be. I recognise absolutely how honoured I am to have my son Finn in my life. This doesn't change.

Ack. Anyway, a long story I'm afraid and one I'm sorry you sympathise with. I hope I'm not overstepping the mark by posting such a long winded intro. Any thoughts would be appreciated.
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hi [Sep. 27th, 2005|12:11 pm]
Survivors of Ectopic Pregnancy

luv4peanut
Hi - I'm Gayle. Kind of just realized that I joined this community a while back and never made an intro post.

So here it goes...

Read more...Collapse )
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new [Sep. 26th, 2005|10:30 am]
Survivors of Ectopic Pregnancy

crustyk
Hi

I'm Charlotte, 33 years old and living in London with my partner of 9 years and our two year old son. We have had a chequered history ttc, resulting in 3 miscarriages, 1 NVD and 2 ectopics resulting in the loss of a tube, in that order, over 3 1/2 years.

We are currently ttc again, and although the risk of ectopic is now lessened, having had the offending tube removed, our chances of conceiving are significantly reduced. Apparently my left side doesn't ovulate quite so regularly...

I have been extremely lucky with both ectopics in that I was early (first 6 weeks, second 9 weeks) into the pregnancies and very well looked after as my previous miscarriages have put me in the high risk category. The Early Pregnancy Unit I go to know me well unfortunately ;-)

I would be interested to hear others stories. I am surprised (but I guess pleased) by how few members this comunity has!
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(no subject) [Jul. 6th, 2005|10:11 am]
Survivors of Ectopic Pregnancy

sakkies
Causes & Symptoms

What are the causes of an ectopic pregnancy?
The fertilised egg normally spends 4-5 days travelling down the tube from the ovary to the cavity of the womb where it implants usually 6-7 days after fertilisation. The most common reason for an ectopic pregnancy is damage to the fallopian tube, causing a blockage or narrowing. There could also be a problem with the walls of the tube, which should normally contract and waft the fertilised egg into the womb. Conditions such as appendicitis or pelvic infection can damage the tube by causing kinks or adhesions, thus delaying the passage of the egg, allowing it to implant in the tube. In most cases however, the cause of the ectopic is not known.

What are the symptoms?

Abdominal pain. Can be persistent and severe. The pain may just be on one-side, but not necessarily on the side of the ectopic

Shoulder-tip pain

Abnormal bleeding. The bleeding may be heavier or lighter than usual and prolonged. Unlike a period, this bleeding is often dark and watery, sometimes described as looking like 'prune juice'

A missed or late period

Bladder or bowel problems. Pain when moving the bowels or on going to the toilet

Pregnancy Test (urine). This may be positive but not always

Sickness and diarrhoea. Often confused with gastroenteritis

Collapse. You may be feeling light-headed or faint, and often this is accompanied by a feeling of something being very wrong.

Who is at risk of an ectopic pregnancy?
Any sexually active woman of childbearing age has a risk of an ectopic pregnancy. However, ectopic pregnancies are more likely if you have had:

Pelvic Inflammatory disease

Endometriosis

Any previous abdominal surgery

A coil fitted

Are on the progesterone-only contraceptive pill (mini pill)

At what stage in pregnancy are ectopic pregnancies most likely to occur?
Ectopic pregnancies usually cause symptoms which lead women to seek help between the 4th and 10th week of pregnancy and most commonly between 6-7 weeks.

Do you ovulate while having an ectopic?
Ovulation usually resumes when hCG levels decrease below 100 IU/l. Therefore it is not unusual to diagnose ovulation when an ectopic pregnancy is in state of resolution following expectant or medical treatment.

Could the level of exercise I did contribute to my ectopic? (I do lots of intense cycling and spinning?)
No, exercise makes no contribution to ectopic pregnancy.


The Future

Is it likely I could have another ectopic pregnancy?
The overall chances of a repeat ectopic pregnancy is about 10% and this depends on the type of surgery carried out and any underlying damage to the remaining tube(s).

What can I do to prevent another ectopic pregnancy?
Since ectopic pregnancy is more related to past tubal damage rather than the present, there is little that can be done to prevent a future ectopic. However, if you feel that you may have ongoing problems of pelvic infection, (and it is well-known that Chlamydia trachomatis may give no symptoms) then testing and antibiotic treatment for this might help to reduce the risk of a future ectopic.

What are my chances of a future successful pregnancy after an ectopic pregnancy?
This very much depends on the condition of your remaining tube(s). The loss of a tube does reduce success rates, but you can still become pregnant and have a successful pregnancy with only one tube intact. Overall, 65% of women will become pregnant within 18 months after an ectopic.

Is it true that I ovulate on alternate sides each month?
This varies from woman to woman. Many women will ovulate from the same side each month with an occasional ovulation from the other side; others will ovulate randomly from side to side. It depends on which ovary contains the egg that is at the right stage of development. However, it probably does not matter as an egg from one ovary can easily travel down the tube on the other side. In the past, the ovary on the side of the ectopic was removed at operation but this is no longer carried out, as it was not found to be beneficial.

When is it safe to have sex again?
This depends what you mean. You could fall pregnant within 6 weeks of an ectopic but the risk of a further ectopic is higher the sooner you try. You should wait for the first normal period before you attempt to get pregnant again. Having sex itself is not dangerous to you as long as you do not find it painful. Normally it would be better to wait around 6 weeks to allow full healing and by that time you should have had your first period.

When can I try to get pregnant again? You could fall pregnant within 6 weeks of an ectopic but the risk of a further ectopic is higher the sooner you try. You should wait for the first normal period before you attempt to get pregnant again.

Is there anything I can do to improve my chances next time?
Not really, but if you have a history of abdominal pain which persists after the ectopic, then you should see your GP to make sure you do not have persistent infection that might contribute to a future ectopic. Overall, the recurrence rate is around 16%.

Do other people feel scared about trying again?
Yes, most people feel scared about trying again. An ectopic pregnancy is a very frightening experience in which many women thought they were going to die. Because of this, most early pregnancy units would offer early scanning in the next pregnancy to make sure that all is well.

Terminology

What is hCG?
The hormone beta hCG is produced by the placenta. In normal pregnancy the levels double every two days. When the level in urine is high enough, the home pregnancy test becomes positive. In ectopic pregnancy, the levels are usually lower and rise more slowly (and your pregnancy may not test positive). A combination of ultrasound findings and blood levels of hCG can make a more accurate and earlier diagnosis allowing more treatment options.
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